MDA is the UK's lead organisation on documentation and information management for museums. We provide advice, support and guidance to museum professionals to help them achieve national standards in the management of their collections. We are a registered charity, funded by a grant from the Museums, Libraries and Archives Council (MLA). The initials 'MDA' formerly stood for 'Museum Documentation Association'.
Our Work
Our work is driven by the idea that professional standards in the management of collections are the key to delivering better public services in museums, galleries and heritage sites. A full description of our work plan for the next three years is provided in the [MDA Strategic Plan 2005-08 and MDA Operational Plan 2006-07] and in the various sections of this website.
About Documentation
'Documentation' is the name of an area of professional practice in the heritage sector. It defines how museums manage knowledge and information about the collections in their care.
SPECTRUM Terminology
MDA has launched SPECTRUM Terminology, a new online service supporting knowledge sharing in the heritage sector. It enables you to learn about, create and find standard terminologies.
2007年5月26日星期六
Who We Are
MDA is the UK's lead organisation on documentation and information management for museums. We provide advice, support and guidance to museum professionals to help them achieve national standards in the management of their collections. We are a registered charity, funded by a grant from the Museums, Libraries and Archives Council (MLA). The initials 'MDA' formerly stood for 'Museum Documentation Association'.
Our Work
Our work is driven by the idea that professional standards in the management of collections are the key to delivering better public services in museums, galleries and heritage sites. A full description of our work plan for the next three years is provided in the [MDA Strategic Plan 2005-08 and MDA Operational Plan 2006-07] and in the various sections of this website.
About Documentation
'Documentation' is the name of an area of professional practice in the heritage sector. It defines how museums manage knowledge and information about the collections in their care.
SPECTRUM Terminology
MDA has launched SPECTRUM Terminology, a new online service supporting knowledge sharing in the heritage sector. It enables you to learn about, create and find standard terminologies.
Our Work
Our work is driven by the idea that professional standards in the management of collections are the key to delivering better public services in museums, galleries and heritage sites. A full description of our work plan for the next three years is provided in the [MDA Strategic Plan 2005-08 and MDA Operational Plan 2006-07] and in the various sections of this website.
About Documentation
'Documentation' is the name of an area of professional practice in the heritage sector. It defines how museums manage knowledge and information about the collections in their care.
SPECTRUM Terminology
MDA has launched SPECTRUM Terminology, a new online service supporting knowledge sharing in the heritage sector. It enables you to learn about, create and find standard terminologies.
Who We Are
MDA is the UK's lead organisation on documentation and information management for museums. We provide advice, support and guidance to museum professionals to help them achieve national standards in the management of their collections. We are a registered charity, funded by a grant from the Museums, Libraries and Archives Council (MLA). The initials 'MDA' formerly stood for 'Museum Documentation Association'.
Our Work
Our work is driven by the idea that professional standards in the management of collections are the key to delivering better public services in museums, galleries and heritage sites. A full description of our work plan for the next three years is provided in the [MDA Strategic Plan 2005-08 and MDA Operational Plan 2006-07] and in the various sections of this website.
About Documentation
'Documentation' is the name of an area of professional practice in the heritage sector. It defines how museums manage knowledge and information about the collections in their care.
SPECTRUM Terminology
MDA has launched SPECTRUM Terminology, a new online service supporting knowledge sharing in the heritage sector. It enables you to learn about, create and find standard terminologies.
Our Work
Our work is driven by the idea that professional standards in the management of collections are the key to delivering better public services in museums, galleries and heritage sites. A full description of our work plan for the next three years is provided in the [MDA Strategic Plan 2005-08 and MDA Operational Plan 2006-07] and in the various sections of this website.
About Documentation
'Documentation' is the name of an area of professional practice in the heritage sector. It defines how museums manage knowledge and information about the collections in their care.
SPECTRUM Terminology
MDA has launched SPECTRUM Terminology, a new online service supporting knowledge sharing in the heritage sector. It enables you to learn about, create and find standard terminologies.
MDA provides advanced information solutions that are essential for decision making.
Our solutions capture and process large amounts of data, produce essential information, and improve the decision making and operational performance of business and government organizations worldwide. Our business is focused on information solutions for market sectors which offer strong repeat business potential, the Financial Services sector and the Surveillance and Intelligence sector. In addition, the Company conducts a broad range of customer funded Advanced Technology development aimed at further extending human capability. MDA serves its worldwide customers base from more than 25 offices located throughout the United States, the The Company's common shares trade on the Toronto Stock Exchange under the symbol
2006 MDA Jerry Lewis Telethon: Who, What, When, Where & Why
MDA National Chairman and Telethon star Jerry Lewis, joined by anchor Ed McMahon and co-hosts, Jann Carl, Tom Bergeron, Norm Crosby, Billy Gilman, Larry King, Tony Orlando and Bob Zany. This year’s on-air talent includes Celine Dion , Paul Anka, Goo Goo Dolls, Lee Greenwood, Dave Matthews Band, Joshua Bell, Jo Dee Messina, Daddy Yankee, Cheap Trick, Rita Rudner, Neil Patrick Harris, Ray Romano, William Shatner, Donald Trump, Sean Hayes, Lance Burton, Clint Holmes, Louie Anderson, George Wallace, Julie Roberts, Maureen McGovern, George Clinton, Village People, the casts of Phantom of the Opera, Shout, The 25th Annual Putnum County Spelling Bee, The Color Purple and the Wedding singer and more.Thousands of business and civic leaders, and some 250,000 volunteers nationwide, will appear on the Telethon or work behind the scenes.
WHAT:
The 41st annual Jerry Lewis Labor Day Telethon to benefit the Muscular Dystrophy Association will feature profiles of and appearances by people served by MDA, with research updates and top entertainment.
WHEN:
Network show airs from 9 p.m. EDT Sunday, Sept. 3, to 6:30 p.m. EDT Monday, Sept. 4. Broadcast times vary in some areas. Check local listings for start times.
WHERE:
Originating from the new South Coast Hotel in Las Vegas, with segments from New York and Chicago.
Reaching nearly 50 million viewers in the United States and Canada, the Telethon, which can also be seen worldwide, thanks to Real Networks, on the Internet at www.mda.org, is broadcast by some 190 television stations in MDA’s “Love Network.”
In conjunction with the Telethon, thousands of grass-roots MDA fund-raising events will be held at parks, malls, racetracks, bowling alleys, golf courses and other locations nationwide.
WHY:
To support MDA’s vital research and services for children and adults with any of the more than 40 neuromuscular diseases covered in its program.
WHAT:
The 41st annual Jerry Lewis Labor Day Telethon to benefit the Muscular Dystrophy Association will feature profiles of and appearances by people served by MDA, with research updates and top entertainment.
WHEN:
Network show airs from 9 p.m. EDT Sunday, Sept. 3, to 6:30 p.m. EDT Monday, Sept. 4. Broadcast times vary in some areas. Check local listings for start times.
WHERE:
Originating from the new South Coast Hotel in Las Vegas, with segments from New York and Chicago.
Reaching nearly 50 million viewers in the United States and Canada, the Telethon, which can also be seen worldwide, thanks to Real Networks, on the Internet at www.mda.org, is broadcast by some 190 television stations in MDA’s “Love Network.”
In conjunction with the Telethon, thousands of grass-roots MDA fund-raising events will be held at parks, malls, racetracks, bowling alleys, golf courses and other locations nationwide.
WHY:
To support MDA’s vital research and services for children and adults with any of the more than 40 neuromuscular diseases covered in its program.
What Your Pledge Dollars Buy
TUCSON, Ariz., Aug. 31, 2006 — Comedy legend Jerry Lewis, national chairman of the Muscular Dystrophy Association and star of its world-renowned Labor Day Telethon, stopped traffic on the famous Las Vegas Strip - literally.
Adorned in a tuxedo, Lewis taped the Telethon’s opening segment on the Strip near Caesar’s Palace. A consummate entertainer, the multitalented Lewis conducted the Las Vegas Philharmonic Orchestra playing Leonard Bernstein’s “Candide.”
During the taping, a two-block stretch of the Strip on Las Vegas Boulevard near Flamingo Road was closed from 2 to 6 a.m. Aug. 22. Lewis was interviewed by “Entertainment Tonight” during the event.
The segment, completed in one take, is a celebration of the Telethon’s return to “the entertainment capital of the world” and Lewis’ adopted hometown after a 12-year run in Hollywood.
The Telethon will be broadcast live from the South Coast Hotel, Sept. 3-4, and seen on 190 television stations in MDA’s “Love Network.” It raises funds to support MDA’s quest to defeat more than 40 neuromuscular diseases through programs of worldwide research, comprehensive services, and far-reaching professional and public health education.
Adorned in a tuxedo, Lewis taped the Telethon’s opening segment on the Strip near Caesar’s Palace. A consummate entertainer, the multitalented Lewis conducted the Las Vegas Philharmonic Orchestra playing Leonard Bernstein’s “Candide.”
During the taping, a two-block stretch of the Strip on Las Vegas Boulevard near Flamingo Road was closed from 2 to 6 a.m. Aug. 22. Lewis was interviewed by “Entertainment Tonight” during the event.
The segment, completed in one take, is a celebration of the Telethon’s return to “the entertainment capital of the world” and Lewis’ adopted hometown after a 12-year run in Hollywood.
The Telethon will be broadcast live from the South Coast Hotel, Sept. 3-4, and seen on 190 television stations in MDA’s “Love Network.” It raises funds to support MDA’s quest to defeat more than 40 neuromuscular diseases through programs of worldwide research, comprehensive services, and far-reaching professional and public health education.
Jerry Lewis MDA Labor Day Telethon: ANSWERS TO FREQUENTLY ASKED QUESTIONS
The first incarnation of what would be the MDA Telethon was in the form of a series of specials produced in the 1950s, some featuring Jerry Lewis with partner Dean Martin. Even after the trauma of the Martin and Lewis breakup in 1956, Lewis remained committed to helping MDA and finding new ways to garner support for its cause.
The first Telethon was held in June 1955 at Carnegie Hall in New York. The 16 1/2-hour show raised $600,000 for MDA and was broadcast on DuMont station WABD.
The first MDA Labor Day Telethon was broadcast in 1966 by just one station in New York City. It was the first televised fund-raising event of its kind to raise more than $1 million.
An “interactive” show long before the computer age popularized the term, the Telethon derives its drama from the ever-increasing fund-raising total posted on the tote board –- by hand in 1966, now electronically. Jerry’s goal of raising “one dollar more” than the previous year’s amount has been more than met almost every year, thanks to the generosity and compassion of the American public.
Lewis, Sinatra and Martin Everyone has a favorite moment from the Telethon, whether it's a Frank Sinatra performance, a great rock number from John Lennon, Led Zeppelin or Michael Jackson, or a classic bit of song-and-dance teamwork between Lewis and his close friends.
Certainly one of the most unforgettable moments occurred on the 1976 broadcast, when Frank Sinatra brought Lewis' estranged partner, Dean Martin, onstage for an impromptu reunion. The comedy duo had barely spoken for 20 years. The surprise embrace Lewis received from his old friend provided one of the most touching moments in the Telethon's remarkable history.
Johnny Carson helped answer phones in 1969, the first Telethon to raise over $2 million.
John Lennon John Lennon and Sonny & Cher were among the great performers to appear on the show in 1972 – the first Telethon seen outside the continental United States.
Sammy Davis Jr. help his friend Jerry for many years on the Telethon, including the first in 1966.
Some of the comedians who have appeared on the Telethon are Steve Allen, Woody Allen, Louie Anderson, Jack Benny, Milton Berle, Erma Bombeck, Carol Burnett, George Burns, Red Buttons, Sid Caesar, Charlie Callas, Drew Carey, Johnny Carson, Bill Cosby, Norm Crosby, Billy Crystal, Rodney Dangerfield, Jeff Foxworthy, Gallagher, Jackie Gleason, Whoopi Goldberg, Shecky Greene, Buddy Hackett, Harvey Korman, Rich Little, Bill Maher, Howie Mandel, Dick Martin, Jackie Mason, Eddie Murphy, Bob Newhart, Rosie O'Donnell, Carl Reiner, Don Rickles, Roseanne, Rita Rudner, Soupy Sales, Jerry Seinfeld, Martin Short, Rip Taylor, Danny Thomas, Robin Williams and Henny Youngman, to name a few.
Some of the famous singers and musical groups who have graced the Telethon stage are Alabama, Frankie Avalon, the B-52s, the Bee Gees, Tony Bennett, Clint Black, Blondie, Michael Bolton, Jon Bon Jovi, Garth Brooks, Vikki Carr, Cher, the Coasters, Perry Como, Harry Connick Sr. and Jr., the Cranberries, Johnny Cash, Harry Chapin and Ray Charles, Phil Collins, the Charlie Daniels Band, Sammy
Celine Dion Davis Jr., Doris Day, Celine Dion, the Doobie Brothers, Gloria Estefan, Fabian, Lola Falana, Ella Fitzgerald, Roberta Flack, Connie Francis, Aretha Franklin, Crystal Gayle, Dizzy Gillespie, Merle Haggard, Marvin Hamlisch, Engelbert Humperdinck, Enrique Iglesias, Julio Iglesias, Michael Jackson, Waylon Jennings, Billy Joel, Jack Jones, Quincy Jones, Tom Jones, the Judds, B.B. King, Kiss, Eartha Kitt, Patti LaBelle, Led Zeppelin, John Lennon, Gary Lewis & the Playboys, Liberace, Little Richard, Loretta Lynn, Barry Manilow, Ziggy Marley, Wynton Marsalis, Reba McEntire, Liza Minnelli, Dean Martin, Paul McCartney, Menudo, Willie Nelson, the Oak Ridge Boys, Tony Orlando, Patti Page, Dolly Parton, Pointer Sisters, Queen, Lou Rawls, LeAnn Rimes, Chita Rivera, Smokey Robinson, the Rolling Stones, Diana Ross, Santana, Bobby Sherman, Frank Sinatra, Lynyrd Skynyrd, the Spice Girls, Ringo Starr, Sonny & Cher, Mel Torme, the Village People, and the Who.
Many Broadway shows have lit up the Telethon stage, including "Annie," "Beauty and the Beast," "Damn Yankees," "Phantom of the Opera," "Sarafina," "South Pacific" and "Starlight Express," “Contact,” “Annie Get Your Gun,” “Chitty Chitty Bang Bang,” “Fiddler on the Roof,” “The Full Monty” and “Hairspray.”
Stage, film and TV actors have also appeared on the Telethon since 1966, including Alan Alda, Ed Asner, Yul Brynner, Raymond Burr, Richard Burton, James Caan, Jackie Cooper, Carol Channing, Robert DeNiro, Kirk Douglas, Patty Duke, Sandy Duncan, Peter Falk, Dennis Farina, Michael J. Fox, Kelsey Grammer, Charlton Heston, Don Johnson, Jack Klugman, Burt Lancaster, Frank Langella, Angela Lansbury, Peter Lawford, Jack Lemmon, Shirley MacLaine, Mary Tyler Moore, Pat Morita, Carroll O'Connor, Jack Palance, Gregory Peck, Bernadette Peters, Tony Randall, Lynn Redgrave, Lee Remick, Burt Reynolds, Debbie Reynolds, Gena Rowlands, Telly Savalas, George C. Scott, Brooke Shields, Suzanne Sommers, Mr. T, Forrest Tucker, Robert Wagner, Denzel Washington, Carl Weathers, Sigourney Weaver and Natalie Wood.
Jerry Lewis has been MDA’s number-one volunteer for more than 50 years. Despite battling debilitating pulmonary fibrosis, severe back pain and a heart attack in recent years, the MDA National Chairman has never missed a Telethon.
Jerry has been closing the Telethon with the theme song for “his kids,” “You’ll Never Walk Alone” for over 40 years.
Jerry Lewis receives no pay for his tireless year-round work for MDA.
Other celebrities who serve as Telethon co-hosts and performers receive no pay for their efforts either.
No one knows why Jerry Lewis, MDA’s number-one volunteer, chooses to devote so much time to helping people with neuromuscular diseases. He feels it isn’t important why he’s involved; rather, it’s important that he’s involved.
Ed McMahon is the anchor of the broadcast, and the 2006 show will be his 39th MDA Telethon.
In 1998, the Jerry Lewis MDA Telethon made history as the first telethon seen around the world via Internet simulcast, hosted by RealNetworks on MDA’s Web site.
The 2007 Jerry Lewis MDA Telethon is the 42nd annual Labor Day show. It will be broadcast on 190 “Love Network” stations across the country and can be seen on the Internet at www.mda.org.
For 15 to 20 minutes each hour, the Telethon "cuts away" from the main stage to allow "Love Network" stations to broadcast appeals and information about MDA programs in their individual markets. They also tie in special events that help boost pledges and donations.
Some 50 million viewers in North America watch the MDA Telethon each year.
Some 250,000 volunteers across the country will be involved in the Telethon over this Labor Day weekend.
The Telethon is the single most important fund-raising event of the year for MDA. Funds raised help the Association carry on its fight against more than 40 neuromuscular diseases, including a worldwide program of basic and applied research, a nationwide network of comprehensive medical and support services, and extensive professional and public education.
No tickets are available to see the national Telethon live. We wish it were otherwise, but the best seat in the house is often right in front of your television screen.
The Telethon moved to Las Vegas in 1973 after seven years in New York City. It was broadcast from the Los Angeles area for 11 years and last year returned to Las Vegas.
The 2007 Telethon will air live from the South Point Hotel and Casino on Las Vegas Boulevard.
The first Telethon was held in June 1955 at Carnegie Hall in New York. The 16 1/2-hour show raised $600,000 for MDA and was broadcast on DuMont station WABD.
The first MDA Labor Day Telethon was broadcast in 1966 by just one station in New York City. It was the first televised fund-raising event of its kind to raise more than $1 million.
An “interactive” show long before the computer age popularized the term, the Telethon derives its drama from the ever-increasing fund-raising total posted on the tote board –- by hand in 1966, now electronically. Jerry’s goal of raising “one dollar more” than the previous year’s amount has been more than met almost every year, thanks to the generosity and compassion of the American public.
Lewis, Sinatra and Martin Everyone has a favorite moment from the Telethon, whether it's a Frank Sinatra performance, a great rock number from John Lennon, Led Zeppelin or Michael Jackson, or a classic bit of song-and-dance teamwork between Lewis and his close friends.
Certainly one of the most unforgettable moments occurred on the 1976 broadcast, when Frank Sinatra brought Lewis' estranged partner, Dean Martin, onstage for an impromptu reunion. The comedy duo had barely spoken for 20 years. The surprise embrace Lewis received from his old friend provided one of the most touching moments in the Telethon's remarkable history.
Johnny Carson helped answer phones in 1969, the first Telethon to raise over $2 million.
John Lennon John Lennon and Sonny & Cher were among the great performers to appear on the show in 1972 – the first Telethon seen outside the continental United States.
Sammy Davis Jr. help his friend Jerry for many years on the Telethon, including the first in 1966.
Some of the comedians who have appeared on the Telethon are Steve Allen, Woody Allen, Louie Anderson, Jack Benny, Milton Berle, Erma Bombeck, Carol Burnett, George Burns, Red Buttons, Sid Caesar, Charlie Callas, Drew Carey, Johnny Carson, Bill Cosby, Norm Crosby, Billy Crystal, Rodney Dangerfield, Jeff Foxworthy, Gallagher, Jackie Gleason, Whoopi Goldberg, Shecky Greene, Buddy Hackett, Harvey Korman, Rich Little, Bill Maher, Howie Mandel, Dick Martin, Jackie Mason, Eddie Murphy, Bob Newhart, Rosie O'Donnell, Carl Reiner, Don Rickles, Roseanne, Rita Rudner, Soupy Sales, Jerry Seinfeld, Martin Short, Rip Taylor, Danny Thomas, Robin Williams and Henny Youngman, to name a few.
Some of the famous singers and musical groups who have graced the Telethon stage are Alabama, Frankie Avalon, the B-52s, the Bee Gees, Tony Bennett, Clint Black, Blondie, Michael Bolton, Jon Bon Jovi, Garth Brooks, Vikki Carr, Cher, the Coasters, Perry Como, Harry Connick Sr. and Jr., the Cranberries, Johnny Cash, Harry Chapin and Ray Charles, Phil Collins, the Charlie Daniels Band, Sammy
Celine Dion Davis Jr., Doris Day, Celine Dion, the Doobie Brothers, Gloria Estefan, Fabian, Lola Falana, Ella Fitzgerald, Roberta Flack, Connie Francis, Aretha Franklin, Crystal Gayle, Dizzy Gillespie, Merle Haggard, Marvin Hamlisch, Engelbert Humperdinck, Enrique Iglesias, Julio Iglesias, Michael Jackson, Waylon Jennings, Billy Joel, Jack Jones, Quincy Jones, Tom Jones, the Judds, B.B. King, Kiss, Eartha Kitt, Patti LaBelle, Led Zeppelin, John Lennon, Gary Lewis & the Playboys, Liberace, Little Richard, Loretta Lynn, Barry Manilow, Ziggy Marley, Wynton Marsalis, Reba McEntire, Liza Minnelli, Dean Martin, Paul McCartney, Menudo, Willie Nelson, the Oak Ridge Boys, Tony Orlando, Patti Page, Dolly Parton, Pointer Sisters, Queen, Lou Rawls, LeAnn Rimes, Chita Rivera, Smokey Robinson, the Rolling Stones, Diana Ross, Santana, Bobby Sherman, Frank Sinatra, Lynyrd Skynyrd, the Spice Girls, Ringo Starr, Sonny & Cher, Mel Torme, the Village People, and the Who.
Many Broadway shows have lit up the Telethon stage, including "Annie," "Beauty and the Beast," "Damn Yankees," "Phantom of the Opera," "Sarafina," "South Pacific" and "Starlight Express," “Contact,” “Annie Get Your Gun,” “Chitty Chitty Bang Bang,” “Fiddler on the Roof,” “The Full Monty” and “Hairspray.”
Stage, film and TV actors have also appeared on the Telethon since 1966, including Alan Alda, Ed Asner, Yul Brynner, Raymond Burr, Richard Burton, James Caan, Jackie Cooper, Carol Channing, Robert DeNiro, Kirk Douglas, Patty Duke, Sandy Duncan, Peter Falk, Dennis Farina, Michael J. Fox, Kelsey Grammer, Charlton Heston, Don Johnson, Jack Klugman, Burt Lancaster, Frank Langella, Angela Lansbury, Peter Lawford, Jack Lemmon, Shirley MacLaine, Mary Tyler Moore, Pat Morita, Carroll O'Connor, Jack Palance, Gregory Peck, Bernadette Peters, Tony Randall, Lynn Redgrave, Lee Remick, Burt Reynolds, Debbie Reynolds, Gena Rowlands, Telly Savalas, George C. Scott, Brooke Shields, Suzanne Sommers, Mr. T, Forrest Tucker, Robert Wagner, Denzel Washington, Carl Weathers, Sigourney Weaver and Natalie Wood.
Jerry Lewis has been MDA’s number-one volunteer for more than 50 years. Despite battling debilitating pulmonary fibrosis, severe back pain and a heart attack in recent years, the MDA National Chairman has never missed a Telethon.
Jerry has been closing the Telethon with the theme song for “his kids,” “You’ll Never Walk Alone” for over 40 years.
Jerry Lewis receives no pay for his tireless year-round work for MDA.
Other celebrities who serve as Telethon co-hosts and performers receive no pay for their efforts either.
No one knows why Jerry Lewis, MDA’s number-one volunteer, chooses to devote so much time to helping people with neuromuscular diseases. He feels it isn’t important why he’s involved; rather, it’s important that he’s involved.
Ed McMahon is the anchor of the broadcast, and the 2006 show will be his 39th MDA Telethon.
In 1998, the Jerry Lewis MDA Telethon made history as the first telethon seen around the world via Internet simulcast, hosted by RealNetworks on MDA’s Web site.
The 2007 Jerry Lewis MDA Telethon is the 42nd annual Labor Day show. It will be broadcast on 190 “Love Network” stations across the country and can be seen on the Internet at www.mda.org.
For 15 to 20 minutes each hour, the Telethon "cuts away" from the main stage to allow "Love Network" stations to broadcast appeals and information about MDA programs in their individual markets. They also tie in special events that help boost pledges and donations.
Some 50 million viewers in North America watch the MDA Telethon each year.
Some 250,000 volunteers across the country will be involved in the Telethon over this Labor Day weekend.
The Telethon is the single most important fund-raising event of the year for MDA. Funds raised help the Association carry on its fight against more than 40 neuromuscular diseases, including a worldwide program of basic and applied research, a nationwide network of comprehensive medical and support services, and extensive professional and public education.
No tickets are available to see the national Telethon live. We wish it were otherwise, but the best seat in the house is often right in front of your television screen.
The Telethon moved to Las Vegas in 1973 after seven years in New York City. It was broadcast from the Los Angeles area for 11 years and last year returned to Las Vegas.
The 2007 Telethon will air live from the South Point Hotel and Casino on Las Vegas Boulevard.
2006 Telethon Families
Megan Assink – Megan Assink, 4, of Grand Rapids, Mich., who’s affected by Pompe’s disease (acid maltase deficiency), is among the first people to receive Myozyme, the first definitive treatment for the rare neuromuscular disease. The drug was developed by Genzyme Corp. with MDA’s assistance, and was approved this spring by the FDA. People with Pompe’s disease experience progressive weakness of voluntary and respiratory muscles. Until now, most children with the infantile form of the disease have had a life expectancy of about two years. Researchers expect that Myozyme, which replaces the missing enzyme, should significantly extend the strength and life expectancy. Megan’s sister, Kelsey, died of Pompe’s in 2002 at age 9.
Caeser Chacon – MDA Goodwill Ambassador for Florida, 15-year-old Caeser Chacon of Tampa, Fla., has limb-girdle muscular dystrophy, a genetic degenerative disease that weakens the muscles around the shoulders and hips. He uses a power wheelchair. Caeser attends various events with his family and speaks on behalf of the Association. He’s in the 10th grade at Tampa Bay Technical High School and loves hanging out with friends, talking on the phone and playing video games.
Jonathan Chacon – 14-year-old Jonathan Chacon of Tampa, Fla., has limb-girdle muscular dystrophy. Like his brother Caeser, he uses a power wheelchair. Jonathan is a ninth-grader at King High School in Tampa and enjoys listening to music, watching TV, playing video games and swimming. Both Jonathan and Caeser attend MDA summer camp.
Luke Christie – MDA National Goodwill Ambassador, Luke Christie, a 13-year-old from Due West, S.C., has spinal muscular atrophy (SMA), a progressive motor neuron disease that causes weakness in the arms, legs and torso. As MDA’s national ambassador, Luke travels the country with his family, representing the Association and the people it serves. Luke is in the eighth grade at Dixie High School in Due West and is interested in becoming a reporter. He enjoys reading, writing and Boy Scouts, in which he’s a First Class Scout working on his personal management merit badge.
Calvin Ray Johnson – Country singer Calvin Ray Johnson, 26, of Mount Washington, Kent., is scheduled to perform on the national broadcast of the Jerry Lewis Labor Day Telethon. Johnson has Duchenne muscular dystrophy and uses a manual wheelchair for mobility. Johnson is an accomplished singer, artist and businessman. In June 2004, he opened Calvin Ray’s Live Music in Leitchfield, where he and his Blue Moon Highway Band perform. He’s recorded four CDs, performed in Nashville, and appeared on the 2001 and 2003 national broadcasts of the MDA Telethon. Johnson also performed at the 2001 Academy of Country Music’s Celebrity Golf Classic in Burbank, Calif. He’s appeared on the Louisville broadcast of the MDA Telethon for several years.
Andrew Kilbarger – Andrew Kilbarger, 9, of Lancaster, Ohio, received the first injection in MDA’s gene therapy trial for Duchenne muscular dystrophy on March 28 at Columbus (Ohio) Children’s Hospital. The trial will test six boys with DMD. The disease begins in childhood and causes weakness and wasting of voluntary muscles. In later stages, it weakens the heart and muscles necessary for breathing. “I’m proud to introduce this courageous family, whose willingness to participate in the early trials of a very promising treatment is a historic contribution to MDA’s fight against Duchenne muscular dystrophy,” MDA National Chairman Jerry Lewis said. “Their story is sure to inspire Telethon viewers to support our ongoing lifesaving research efforts.”
Augie and Lynne Nieto – Augie and Lynne Nieto of Corona del Mar, Calif. are co-chairpersons of the Muscular Dystrophy Association’s ALS Division. Augie, 48, received a diagnosis of amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease) in March 2005. Augie is the co-founder and former president of Life Fitness, and the current chairman of Octane Fitness. As co-chairs of MDA’s ALS Division, the Nietos help raise awareness through public appearances, speaking engagements, media interviews and public service announcements. Augie also serves MDA as a national vice president. He has launched an ALS campaign with MDA called Augie’s Quest, which has raised more than $4 million to benefit MDA’s ALS Division research program.
Jacob Richard – 2006 MDA Goodwill Ambassador for Houston, 9-year-old Jacob Richard of Sugar Land, Texas, has Duchenne muscular dystrophy, a genetic disorder characterized by progressive wasting and weakness of the voluntary - or skeletal – muscles. The disease eventually affects the heart and breathing muscles. Jacob uses a wheelchair part time. As an MDA ambassaor Jacob attends various events with his family to speak on behalf of the Association. He’s a third-grader at St. Laurence Catholic School and loves reading, singing, swimming and listening to music.
Jeni Stepanek – An MDA national vice president, Jeni Stepanek of Rockville, Md., will once again appear on the Telethon. Stepanek is the mother of the late Mattie J.T. Stepanek, best-selling poet and MDA National Goodwill Ambassador. She has an adult-onset form of mitochondrial myopathy, the disease that claimed Mattie and her other three children. Stepanek often speaks publicly to carry forward her son’s mission seeking peace, hope and an end to neuromuscular diseases. Mattie’s sixth and final volume of poetry, Reflections of a Peacemaker: A Portrait Through Heartsongs, was released last year. A second book, Just Peace: A Message of Hope, a collection of essays and correspondence between Mattie and President Jimmy Carter, hit stores in March. Stepanek recently moved into a new house facing the 26.2-acre Mattie J.T. Stepanek Park, dedicated earlier this year by the city of Rockville. Stepanek is an author, Ph.D. candidate and faculty research associate at the University of Maryland in Baltimore, studying early childhood special education.
Abbey Umali – 2006 MDA California Goodwill Ambassador, Abbey Umali, 7, of Redlands, Calif., has Dejerine-Sottas disease, a neurological disorder characterized by muscle wasting, lack of coordination and some loss of sensation in upper and lower extremities. She’s ambulatory with braces. Abbey attends various events with her family to speak on behalf of the Association. She’s a second-grader at Loma Linda Academy who loves swimming, riding her bike, singing and playing the piano.
Bradley Walker – Country music singer Bradley Walker, 28, of Athens, Ala. will perform live on the national broadcast of the Telethon. In 1989, Walker was profiled on the Telethon, and performed on the show in 2001 and 2002. He has nemaline myopathy, a metabolic muscle disease. Walker uses a power wheelchair for mobility. He’s a fixture in the bluegrass community, and has performed at the Grand Ole Opry and was hailed as the “next great voice of bluegrass music” by Bluegrass Unlimited magazine in September 2005. Walker’s debut album, “Highway of Dreams,” is due out Sept. 12 from Rounder Records.
Caeser Chacon – MDA Goodwill Ambassador for Florida, 15-year-old Caeser Chacon of Tampa, Fla., has limb-girdle muscular dystrophy, a genetic degenerative disease that weakens the muscles around the shoulders and hips. He uses a power wheelchair. Caeser attends various events with his family and speaks on behalf of the Association. He’s in the 10th grade at Tampa Bay Technical High School and loves hanging out with friends, talking on the phone and playing video games.
Jonathan Chacon – 14-year-old Jonathan Chacon of Tampa, Fla., has limb-girdle muscular dystrophy. Like his brother Caeser, he uses a power wheelchair. Jonathan is a ninth-grader at King High School in Tampa and enjoys listening to music, watching TV, playing video games and swimming. Both Jonathan and Caeser attend MDA summer camp.
Luke Christie – MDA National Goodwill Ambassador, Luke Christie, a 13-year-old from Due West, S.C., has spinal muscular atrophy (SMA), a progressive motor neuron disease that causes weakness in the arms, legs and torso. As MDA’s national ambassador, Luke travels the country with his family, representing the Association and the people it serves. Luke is in the eighth grade at Dixie High School in Due West and is interested in becoming a reporter. He enjoys reading, writing and Boy Scouts, in which he’s a First Class Scout working on his personal management merit badge.
Calvin Ray Johnson – Country singer Calvin Ray Johnson, 26, of Mount Washington, Kent., is scheduled to perform on the national broadcast of the Jerry Lewis Labor Day Telethon. Johnson has Duchenne muscular dystrophy and uses a manual wheelchair for mobility. Johnson is an accomplished singer, artist and businessman. In June 2004, he opened Calvin Ray’s Live Music in Leitchfield, where he and his Blue Moon Highway Band perform. He’s recorded four CDs, performed in Nashville, and appeared on the 2001 and 2003 national broadcasts of the MDA Telethon. Johnson also performed at the 2001 Academy of Country Music’s Celebrity Golf Classic in Burbank, Calif. He’s appeared on the Louisville broadcast of the MDA Telethon for several years.
Andrew Kilbarger – Andrew Kilbarger, 9, of Lancaster, Ohio, received the first injection in MDA’s gene therapy trial for Duchenne muscular dystrophy on March 28 at Columbus (Ohio) Children’s Hospital. The trial will test six boys with DMD. The disease begins in childhood and causes weakness and wasting of voluntary muscles. In later stages, it weakens the heart and muscles necessary for breathing. “I’m proud to introduce this courageous family, whose willingness to participate in the early trials of a very promising treatment is a historic contribution to MDA’s fight against Duchenne muscular dystrophy,” MDA National Chairman Jerry Lewis said. “Their story is sure to inspire Telethon viewers to support our ongoing lifesaving research efforts.”
Augie and Lynne Nieto – Augie and Lynne Nieto of Corona del Mar, Calif. are co-chairpersons of the Muscular Dystrophy Association’s ALS Division. Augie, 48, received a diagnosis of amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease) in March 2005. Augie is the co-founder and former president of Life Fitness, and the current chairman of Octane Fitness. As co-chairs of MDA’s ALS Division, the Nietos help raise awareness through public appearances, speaking engagements, media interviews and public service announcements. Augie also serves MDA as a national vice president. He has launched an ALS campaign with MDA called Augie’s Quest, which has raised more than $4 million to benefit MDA’s ALS Division research program.
Jacob Richard – 2006 MDA Goodwill Ambassador for Houston, 9-year-old Jacob Richard of Sugar Land, Texas, has Duchenne muscular dystrophy, a genetic disorder characterized by progressive wasting and weakness of the voluntary - or skeletal – muscles. The disease eventually affects the heart and breathing muscles. Jacob uses a wheelchair part time. As an MDA ambassaor Jacob attends various events with his family to speak on behalf of the Association. He’s a third-grader at St. Laurence Catholic School and loves reading, singing, swimming and listening to music.
Jeni Stepanek – An MDA national vice president, Jeni Stepanek of Rockville, Md., will once again appear on the Telethon. Stepanek is the mother of the late Mattie J.T. Stepanek, best-selling poet and MDA National Goodwill Ambassador. She has an adult-onset form of mitochondrial myopathy, the disease that claimed Mattie and her other three children. Stepanek often speaks publicly to carry forward her son’s mission seeking peace, hope and an end to neuromuscular diseases. Mattie’s sixth and final volume of poetry, Reflections of a Peacemaker: A Portrait Through Heartsongs, was released last year. A second book, Just Peace: A Message of Hope, a collection of essays and correspondence between Mattie and President Jimmy Carter, hit stores in March. Stepanek recently moved into a new house facing the 26.2-acre Mattie J.T. Stepanek Park, dedicated earlier this year by the city of Rockville. Stepanek is an author, Ph.D. candidate and faculty research associate at the University of Maryland in Baltimore, studying early childhood special education.
Abbey Umali – 2006 MDA California Goodwill Ambassador, Abbey Umali, 7, of Redlands, Calif., has Dejerine-Sottas disease, a neurological disorder characterized by muscle wasting, lack of coordination and some loss of sensation in upper and lower extremities. She’s ambulatory with braces. Abbey attends various events with her family to speak on behalf of the Association. She’s a second-grader at Loma Linda Academy who loves swimming, riding her bike, singing and playing the piano.
Bradley Walker – Country music singer Bradley Walker, 28, of Athens, Ala. will perform live on the national broadcast of the Telethon. In 1989, Walker was profiled on the Telethon, and performed on the show in 2001 and 2002. He has nemaline myopathy, a metabolic muscle disease. Walker uses a power wheelchair for mobility. He’s a fixture in the bluegrass community, and has performed at the Grand Ole Opry and was hailed as the “next great voice of bluegrass music” by Bluegrass Unlimited magazine in September 2005. Walker’s debut album, “Highway of Dreams,” is due out Sept. 12 from Rounder Records.
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